I have a lot of wonderful, caring people in my life who ask me what it is like to have Retinitis Pigmentosa (RP). Unfortunately, it is not easy or simple to answer because 1) it is different for every person with the disease, and 2) RP is degenerative, so what might be an accurate description one year could be diminished in the next.
Fortunately, there are some very creative people in this world, and they have sought to explain what they see using video comparisons. I have found a few on YouTube that I think are extremely helpful in showing what it is like to live with a reduced visual field.
Here is a link to a playlist I created: http://www.youtube.com/playlist?list=PLYpZu8YoO75PCNuBGMjy5cobdWVakNaeQ
For those with RP, I would be interested in knowing if these videos capture your world. For those with “normal” sight, I would be interested in hearing your reactions, thoughts and questions you may have.
I think it is so important to talk about RP and inform people that there are degrees of visual impairment. I suspect most people not affected simply assume the issue is black and white: you either see or you don’t. Let’s talk about it and see if we can find a way to answer those wonderful, caring people who love us and want to help.